Illinois Compiled Statutes
410 ILCS 513/5 (2026)
Legislative findings; intent
✓ current as of May 2026
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(410 ILCS 513/5)
Sec. 5. Legislative findings; intent. The General Assembly finds that:
(1) The use of genetic testing can be valuable to an | individual. |
(2) Despite existing laws, regulations, and | professional standards which require or promote voluntary and confidential use of genetic testing information, many members of the public are deterred from seeking genetic testing because of fear that test results will be disclosed without consent in a manner not permitted by law or will be used in a discriminatory manner. |
(3) The public health will be served by facilitating | voluntary and confidential nondiscriminatory use of genetic testing information. |
(4) The use of electronic health record systems and | the exchange of patient records, both paper and electronic, through secure means, including through secure health information exchanges, should be encouraged to improve patient health care and care coordination, facilitate public health reporting, and control health care costs, among other purposes. |
(5) Limiting the use or disclosure of, and requests | for, protected health information to the minimum necessary to accomplish an intended purpose, when being transmitted by or on behalf of a covered entity under HIPAA, is a key component of health information privacy. The disclosure of genetic information, when allowed by this Act, shall be performed in accordance with the minimum necessary standard when required under HIPAA. |
(Source: P.A. 98-1046, eff. 1-1-15.)
Notes of Decisions
Cited in 6
cases (6 in the last 5 years), 2023–2025 · leading case: Carolyn Bridges v. Blackstone, Inc., 66 F.4th 687 (7th Cir. 2023).
Carolyn Bridges v. Blackstone, Inc., 66 F.4th 687 (7th Cir. 2023). “” 410 ILCS 513/5(5). The plaintiffs maintain that the “requests for” language should inform how we interpret the “be compelled” language in Section 30.”
Ginski v. Ethos Seafood Grp., LLC (N.D. Ill. 2024). “” 410 ILCS 513/5(2). Defendants do not otherwise contend with the Rosenbach court’s analysis.”
Taylor v. Union Pac. R.R. Co. (N.D. Ill. 2024). “” 410 ILCS 513/5(2). To that end, the section at issue here protects against a form of involuntary disclosure by prohibiting employers from merely “solicit[ing], request[ing], or requir[ing]” the “genetic information of a person … as a condition of employment [or] preemployment…”
Branson v. Caterpillar Inc. (N.D. Ill. 2024). “The Illinois General Assembly amended GIPA in 2008 to mirror provisions of the federal Genetic Information Nondiscrimination Act applying to employers.”
Henry v. AbbVie Inc. (N.D. Ill. 2024). “410 ILCS 513/5(2); see also Bridges v. Blackstone, Inc.”
Short v. MV Transp., Inc. (N.D. Ill. 2025). “410 ILCS 513/5(2); see also Bridges v. Blackstone, Inc.”
— 410 ILCS 513/5(2) — 5 cases
Taylor v. Union Pac. R.R. Co. (N.D. Ill. 2024). “” 410 ILCS 513/5(2). To that end, the section at issue here protects against a form of involuntary disclosure by prohibiting employers from merely “solicit[ing], request[ing], or requir[ing]” the “genetic information of a person … as a condition of employment [or] preemployment…”
Branson v. Caterpillar Inc. (N.D. Ill. 2024). “The Illinois General Assembly amended GIPA in 2008 to mirror provisions of the federal Genetic Information Nondiscrimination Act applying to employers.”
Henry v. AbbVie Inc. (N.D. Ill. 2024). “410 ILCS 513/5(2); see also Bridges v. Blackstone, Inc.”
Ginski v. Ethos Seafood Grp., LLC (N.D. Ill. 2024). “” 410 ILCS 513/5(2). Defendants do not otherwise contend with the Rosenbach court’s analysis.”
Short v. MV Transp., Inc. (N.D. Ill. 2025). “410 ILCS 513/5(2); see also Bridges v. Blackstone, Inc.”
— 410 ILCS 513/5(3) — 1 case
Ginski v. Ethos Seafood Grp., LLC (N.D. Ill. 2024). “” 410 ILCS 513/5(2). Defendants do not otherwise contend with the Rosenbach court’s analysis.”
— 410 ILCS 513/5(5) — 1 case
Carolyn Bridges v. Blackstone, Inc., 66 F.4th 687 (7th Cir. 2023). “” 410 ILCS 513/5(5). The plaintiffs maintain that the “requests for” language should inform how we interpret the “be compelled” language in Section 30.”
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